Migraine care in the digital era: social listening insights and neurologists’ perspectives from Türkiye
Frontiers in Digital Health, cilt.8, 2026 (ESCI, Scopus)
- Yayın Türü: Makale / Tam Makale
- Cilt numarası: 8
- Basım Tarihi: 2026
- Doi Numarası: 10.3389/fdgth.2026.1891640
- Dergi Adı: Frontiers in Digital Health
- Derginin Tarandığı İndeksler: Emerging Sources Citation Index (ESCI), Scopus, CINAHL, EMBASE, Directory of Open Access Journals, Health Research Premium Collection (ProQuest)
- Anahtar Kelimeler: digital era, digital health literacy, migraine, patient journey, physician perspectives, social listening, social media, Türkiye
- Açık Arşiv Koleksiyonu: AVESİS Açık Erişim Koleksiyonu
- Acıbadem Mehmet Ali Aydınlar Üniversitesi Adresli: Evet
Özet
Objective – To explore migraine-related concerns expressed in user-generated digital entries from a Turkish online health platform and contextualize them through neurologists’ expert perspectives. Background: Digital platforms may shape symptom interpretation, treatment expectations, and communication; however, social-listening findings require cautious interpretation given platform-related and methodological limitations. Methods – This exploratory study combined secondary interpretation of a pre-existing proprietary Kimola social-listening report with a survey of 10 neurologists with headache expertise. The report included analytical outputs from 2, 500 migraine-related user-generated entries posted on Doktorsitesi.com between 2007 and 2023. Because raw entries, preprocessing records, and coding files were unavailable to the authors, findings were interpreted descriptively as source-report outputs. Neurologist responses were summarized as raw counts and narratively contextualized with entry-derived themes, without formal mixed-methods integration. Results – According to the source report, entries were categorized into four migraine-journey stages: pre-treatment, treatment phase, disease experience, and post-treatment. These stages reflected symptom interpretation and diagnostic uncertainty, treatment effectiveness and safety concerns, broader disease burden, and discontinuation or interest in non-oral, procedural, or complementary options after treatment. In the survey, 7 of 10 neurologists agreed or strongly agreed that many people with migraine use social media for migraine-related information, and 9 of 10 agreed or strongly agreed that misinformation complicates physician–patient communication. Conclusions – Among digitally engaged platform users, migraine-related entries revealed unmet information needs and treatment-related concerns. Neurologists highlighted the need for expert-led, evidence-based digital education. Although exploratory and not statistically generalizable, these findings may inform communication and digital education strategies in migraine care.