Ethical Principles in European National Dementia Strategies: A Framework Analysis

Creative Commons License

Schou-Juul F., Serrat R., Hinrichsen C., Szczesniak D., Cannella V., Jarasiunaite- Fedosejeva G., ...Daha Fazla

JOURNAL OF AGING & SOCIAL POLICY, cilt.1, sa.1, ss.1-21, 2026 (SSCI, Scopus)

  • Yayın Türü: Makale / Tam Makale
  • Cilt numarası: 1 Sayı: 1
  • Basım Tarihi: 2026
  • Doi Numarası: 10.1080/08959420.2025.2599117
  • Dergi Adı: JOURNAL OF AGING & SOCIAL POLICY
  • Derginin Tarandığı İndeksler: Scopus, Social Sciences Citation Index (SSCI), IBZ Online, Abstracts in Social Gerontology, AgeLine, CINAHL, Geobase, MEDLINE, Political Science Complete, Public Affairs Index, Social Sciences Abstracts
  • Sayfa Sayıları: ss.1-21
  • Açık Arşiv Koleksiyonu: AVESİS Açık Erişim Koleksiyonu
  • Acıbadem Mehmet Ali Aydınlar Üniversitesi Adresli: Evet

Özet

Frederik Schou-Juul, Rodrigo Serrat, Carsten Hinrichsen, Dorota Szczesniak, Valentina Cannella, Gabija Jarasiunaite- Fedosejeva, Lena Östlund, Rute Brites, Rastislav Ostríž, José Atienza Carrasco, Karina Palkova, Iva Holmerova, Nilufer Korkmaz-Yaylagul, Tânia Brandão, Rosa Silva, Yesim Isil Ulman, Bert Gordijn, Linda Johansson, Therése Bielsten, Joanna Rymaszewska, Corinna Porteri, and Sigurd Lauridsen  (2026). Ethical Principles in European National Dementia Strategies: A Framework Analysis. Journal of Aging & Social Policy, 1–21. https://doi.org/10.1080/08959420.2025.2599117 


ABSTRACT

The prevalence of dementia is rising rapidly across the European Union, necessitating comprehensive national and international responses. National Dementia Strategies serve as key policy instruments, outlining priorities for dementia care across European countries. While numerous organizations have proposed ethical principles to guide dementia policy, limited knowledge exists on ethical priorities in EU dementia policies. This study examines the ethical principles embedded in European national dementia atrategies, analyzing their definitions, contexts of application, and relative emphasis. Using framework analysis, this study systematically analyzed 17 European national dementia atrategies, identifying commonalities and variations in ethical priorities. Findings reveal a broad spectrum of ethical principles present across national dementia strategies throughout the EU. However, findings also suggest significant variations in how principles are interpreted.


KEYWORDS:


Dementia; ethical frameworks; ethical principles; Ethics; European National Dementia Strategies; qualitative research


In the paper, we analyze 17 EU National Dementia Strategies to map which ethical principles they include, how they’re interpreted, and how strongly they’re emphasized. Across countries we see broad agreement on principles such as person-centeredness, dignity, autonomy, inclusive/adaptive environments, destigmatisation, and justice/equity, but also substantial variation in how these are articulated and prioritized across EU.

 

You can access the article (which will soon be Open Access) here: https://www.tandfonline.com/eprint/SVQ9PWBYJ37IEHT5WMDR/full?target=10.1080/08959420.2025.2599117#d1e1103