Assessment of Health-Related Quality of Life in Pediatric Acute Lymphoblastic Leukemia Survivors: Perceptions of Children, Siblings, and Parents
TURKISH JOURNAL OF HEMATOLOGY, cilt.36, sa.2, ss.112-116, 2019 (SCI-Expanded, Scopus, TRDizin)
- Yayın Türü: Makale / Tam Makale
- Cilt numarası: 36 Sayı: 2
- Basım Tarihi: 2019
- Doi Numarası: 10.4274/tjh.galenos.2018.2018.0351
- Dergi Adı: TURKISH JOURNAL OF HEMATOLOGY
- Derginin Tarandığı İndeksler: Science Citation Index Expanded (SCI-EXPANDED), Scopus, TR DİZİN (ULAKBİM)
- Sayfa Sayıları: ss.112-116
- Anahtar Kelimeler: Acute lymphoblastic leukemia, Health-related quality of life, KINDLR questionnaire, LONG-TERM SURVIVORS, CHILDHOOD-CANCER, DEPRESSION, THERAPY, QUESTIONNAIRE, ADOLESCENTS, DIAGNOSIS, GERMANY, ANXIETY
- Acıbadem Mehmet Ali Aydınlar Üniversitesi Adresli: Evet
Özet
Objective: We investigated the health-related quality of life (HRQL) in survivors of pediatric acute lymphoblastic leukemia (ALL) and evaluated the perceptions of the children, their siblings, and their parents.
Materials and methods: Seventy ALL survivors, who were between 7 and 17 years of age and had completed therapy ≥2 years, were included. The control group consisted of their healthy siblings. HRQL was assessed by the age-specific KINDLR questionnaire.
Results: No significant differences could be found among HRQL scores of ALL survivors with respect to variables such as sex, risk group, and having chronic illness. HRQL scores for physical well-being, emotional well-being, family, and social functioning of the patient and sibling self-reports and parent proxy reports were lower than the expected values for healthy and chronically ill children.
Conclusion: These results demonstrate that both ALL survivors and their families need help via psychological counseling programs to improve their HRQL even after completion of therapy.